Despite the pain, you smile. Despite your tears, you are easily humored. Despite your lack of understanding, you find joy. Despite your anxieties, you love so much. Despite your uncomfort, you long for touch. Despite your body fighting against you every day, you keep living to your fullest ability. Despite your clumsiness increasing, you continue to run. Despite how often you fall, you always get back up and try again. Despite your loss of many words, you continue to talk as much as you can. Despite your inability to sing your favorite songs, you still listen, smile and mumble a few words of your favorite lyrics. Despite your sensitive tummy, you love food more than anyone I know. Despite your lack of safety awareness, you see no danger and only beauty around you. Despite your fatal diagnosis, every day is a new day for you to give it your all. Despite our broken hearts, you know nothing but love.
You are the strongest girl I know, Haidyn Grace. 💜
Hey Y’all! 👋🏻
My name is Carrie and I fill the role of many titles.
Some of my favorites include • Mama, Wife, Daughter, Sister, Friend, Fitness Fanatic, Mama of a Sanfilippo Syndrome child, Pup Mama & of course you know I’m a Jesus Lover. ☀️
I’m the wife to an amazing, selfless, husband that I thank Jesus for every, single, day. I am the Mama of two, beautiful daughters - my oldest being a neurotypical (so they say 🤪) child and my youngest has been diagnosed with a genetic, degenerative and fatal disease known as Sanfilippo Syndrome. We are living the best our best lives and trying to achieve many dreams while we are blessed with our time together.
I was blessed to grow up in the beautiful state of Georgia ( 🍑’s do it best), where I still reside, and belong to the most unconditionally, overwhelmingly, close-knit, loving family.. and for that, I am thankful.
I hope you’re here to enjoy my love for writing about a few topics I’m passionate about. All things Sanfilippo Syndrome, raising awareness, mom life, self love, God’s Grace, fitness and of course, some food 🥰😋.
“The light shines in the darkness.” - John 1:5 ✨
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One thought on “Indescribable Strength”
She’s so beautiful!!!
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